Neurodiversity Awareness/Appreciation

Neurodiversity Awareness/Appreciation

Tuesday, September 30, 2014

Dreaming Zebra

 Hi everyone! I have a new banner on my blog. If you look to the left, you'll see a post that says "Kids Need Art!" The banner is for Dreaming Zebra, an organization based in Oregon that provides free music and art supplies to schools and organizations that work with children, that would otherwise have difficulty obtaining these supplies. They provide things like Sharpies, paintbrushes, paints and canvases for oil and acrylic painting, sketchbooks, and colored pencils, and even things like pottery wheels,  as well as "recycled" materials that can be used as creative supplies for kids... old calendars, fabric scraps, etc. They also provide musical instruments. 

They actually help organizations all over the place, even though they are based in Oregon. Some examples of programs they help out are art programs for children in hospitals, homeless shelters, special education schools, city youth programs, immigrant and refugee organizations, and even international children's aide programs.

While art is definitely recreational and educational, and helps children develop imagination and problem-solving skills, in many of these cases it is also therapeutic. Art can provide a way for children going through difficult experiences to process things and communicate their feelings. 

My sister-in-law Sunny was the one who first told me about this program. She is very creative, and sells a lot of her own artwork and crafts. She donates some of the profits to Dreaming Zebra. 

I love art, and I am glad to feature this banner on my site in order to let everyone else know about this great organization. Click on the banner to learn more about what they do, and to look for opportunities to volunteer or donate recycled materials!

Okay. I just wanted to draw your attention to that. Now back to your regularly scheduled activities. 

Saturday, September 27, 2014

Necesito Dinero!

 Well, everyone, I am about to humbly ask you for a favor.
You see, I am about to leave for a visit to Oregon in a few days. This is a trip meant to help me get used to Oregon again, see where I'd want to live out there, and keep me from going completely insane again if I get another job offer out there.
The problem is, I now find myself flat broke!
You see, I had a lot of money saved up for my move. But I actually lost some of it when I did not go, because I had reserved hotel rooms for the nights I was traveling, and because I got them from a discount site, I could not get a refund when I cancelled. Plus, I spent a lot on applications for apartments, which was wasted because I never ended up actually getting an apartment. Also, because I thought I was going to be working soon, I payed off some of my student loan, which I had neglected all summer... I thought it would give my credit a little boost! Then, when I realized I was not going, there was a period of time when I was just going through too much depression to think about working. And right after I swallowed my pride and started subbing again, I got sick for an entire week!
I spent a lot of what was left on my plane ticket to Portland. I squandered more on luxuries such as gas for my car to get to work, and the co-pay on my therapy. I thought, since that was almost a month ago, that when I got my paycheck I would be back in business. But because of the way the payroll goes, I did not get any paycheck at all on the 15th, and on this past Friday I only got paid for one day of work. So... yeah... temporarily up a creek with not much of a paddle, and asking your help!

First of all, if you know my family, PLEASE do not tell this to my parents! They will just give me a long and angry lecture on being more responsible with money, and will try to pry into all of my affairs. Sometimes you need privacy from your parents, you know?

Okay. My proposal is this. If any of you would be willing to borrow me a small amount of money (whatever you feel comfortable sending) and could send it to me through Paypal... I would be grateful forever! And as soon as I get my next normal paycheck, in October, I will do one of two things. I will pay you back individually, or, I will donate it to charity. (Probably to the Children's Tumor Foundation in honor of local hero Rosie, who has neurofibromatosis, and in honor of several other kids I've known who had tumors, including my brother when he was a baby.)

Mostly I need it for food and other necessities while I am on my trip.

Here is my Paypal account. I know it says "Buy Now" but I didn't want to put up a "Donate" one because I'm not a nonprofit organization.

I know that for some of us even donating a dollar is a sacrifice. I've had to turn down a lot of requests for help lately myself. So if you can't or don't want to do this, I won't be mad! And for whoever can help me, I will be eternally grateful!

Something Amazing

Something really cool happened while I was at equine therapy the other day.
One of the best things about equine therapy is that it takes place more or less outside... either in a barn (which is technically inside but still kind of feels like you're outside) or out in the pastures.  It is way better for me than trying to sit still on a couch in some dimly lit room. (You will never see my ADHD come out more than when I am sitting on a couch in a dimly lit room that is supposed to look like someone's living room or something, with a soft-spoken therapist sitting across from me. I literally cannot stop moving, plus sometimes I get this weird twitch in my eyes that always makes the soft-spoken therapist think I am about to cry, but I think it is really caused by the weird lighting and the stress from trying to sit still.) 
The other day Julie (my equine therapy person) and I were out in the pasture where her new horse Buddy was hanging out with his friend Wiley. The pasture where we were is in back of the barn, and there is a pond, so the horses can just wander around and drink from the pond when they feel like it. Whenever Buddy and Wiley are out there together, they just walk around together, sometimes sort of jostling each other and sometimes playing by yanking on each other's halters or nudging each other. They remind me of two brothers "horsing" around. Wiley, who is older, would be the calm and responsible older brother, and Buddy would be the goofy little brother. 
Usually we stay kind of far away from the horses, just to give them their space. If we do approach them we try to be quiet and still and just watch them, so that they can still do their own thing. But sometimes they will actually come running over to us. When they do, for some reason Wiley would always push up against me as he walked past. It reminded me of the way a cat will rub up against your legs. 
(Wiley is the brown one and Buddy is the whiteish one. I love Buddy's white hair and dark main... he's so pretty, isn't he?)

Lately I had been thinking a lot about Native American spirituality, and how they were so close to nature. In the Native Americans' lifestyle, they were actually an equal part of nature and they lived in harmony with it. Whereas the Europeans who eventually took over felt like they needed power and control over everything and everyone and caused a lot of destruction.
Julie asked if I wanted to try a visualization exercise about animal totems. Just as she said that, a crane swooped down and landed by the pond! That was pretty cool. The crane actually stayed around for a long time and seemed to be looking for food. 
Then we sat down by the edge of the pond. We were in a spot that was pretty far away from the horses, and our view of them was mostly blocked by some large plants. I wasn't sure if the visualization thing would work, because I am not always good at focusing my mind. I was closing my eyes and I was supposed to picture myself being in a beautiful meadow. 
And then suddenly I could see it... and Wiley was in it!
I sort of refocused on the meadow to see if I was just remembering Wiley because I had just seen him. But he was definitely in the meadow, standing calmly and grazing, with an orange butterfly flying around him. 
Wiley stayed with me through the whole exercise, which involved walking down a path, and stopping to look in a river (which Wiley took a drink out of) and then climbing a mountain (Wiley waited at the bottom, because horses are not great at rock climbing!)
And then I was supposed to visualize an animal appearing. As Julie told me to visualize an animal (It could be any animal, you just have to see which one comes to mind without trying or anything.) What I saw was a wolf!  I was a little surprised by this because I had never thought of a wolf, but then again, it makes sense, considering my connection with dogs. 
Just then Julie told me to open my eyes, because as soon as she had said to visualize an animal, the horses had suddenly started running towards us! We stood up so they wouldn't trample us. But they actually were heading directly for us, and they stopped when they got to us. They had very purposefully decided to come visit us. And Wiley came right up to me and sort of nudged me with his head,. This was the first time he had let me pet him, except for when he just ran past and pushed against me. He nudged me and sort of nodded his head (which horses sometimes do when they are happy I think) and I swear on everything, I could feel him kind of chuckling, like the two of us were in on something.
I was so happy and excited when I told Julie, "Wiley was there! Wiley was in my visualization!"
At first I wondered why Wiley had appeared but not Buddy, since I know Buddy better. But I thought it was probably because Wiley is older and wiser, while Buddy is more of a playful youngster. 
The horses stayed near us for the rest of the time, until I had to go. As we were walking back up to the barn, we also saw a red-tailed hawk! It felt like all sorts of members of nature were connecting with me that day. 
I am sure all of this makes sense to some of you, and seems just crazy to others. That's okay... we all have different beliefs. And to me, this was a very special experience! 
In many cultures' beliefs, including Native Americans, each animal has its own messages and "medicine" that it brings when it appears to you, either in a dream, a visualization, or real life. I have some books on the topic, and after I got home I looked them up. One of the things a horse symbolizes is the need for emotional freedom to move on in life. (That makes a lot of sense to me!) It also symbolizes movement, travel, new journeys, and discovering your own freedom and power in life. Plus, when you are faced with a decision, a horse totem can help you figure things out. Does that explain my life lately, or what? I feel like Wiley appeared in my vision not only to connect with me personally, but to represent horse medicine. 
I also looked up the wolf and the butterfly that appeared in my vision, plus the crane and hawk that appeared in real life. Here's what I found out. 

Wolf - Making firm emotional attachments, and trusting your insight and gut instinct. Listening to your feelings and thoughts and intuition. Breathing new life into your life rituals. Find a new path or a new journey, and take control of your life. Having a loyal sense of family and community. (All very relevant to my life right now!)

Butterfly - Transition, change. growth, and transformation. Butterflies add color and joy to your life, and remind you not to take things so seriously. 

Crane - Using your past as a source of strength for the present. Finding balance in your life. Trusting your own wisdom. 

Red-tailed hawk - Finding balance and finding your true purpose. Moving toward your soul purpose in a more dynamic way. A need to be open to new things. Helping teach others new things. 

So... are the animals speaking to me, or what!??!?!? I think I'd better listen! 

If you look closely at Wiley in this one, you can totally see he is smiling! ;)

What about you? Do you have any spirit animals or animal totems? 

Saturday, September 20, 2014

I Am Sheepish

The other day I posted about losing my best friend.

But after I read the entire, very long, post to myself later on, I understood why that post was met mostly with the chirping of crickets. I realized how crazy the whole story sounded. In fact, it almost seemed like I was a stalker, refusing to leave these people alone!

The truth is, I was, at the time, so desperate for a sense of belonging, that it blinded me. I was grateful for any little bit of kindness from anyone.

I was also somewhat of an escape artist. Before meeting Clara and Steve, I had temporarily "belonged" to several other groups throughout the years. But whenever I sensed conflict and unease, I used to do a disappearing act. While everyone else was fighting or freaking out, I would slip away and find somewhere to hide. It usually seemed to be under the stairs of whatever motel or apartment building we were staying in. When the dust had settled, the others would notice I was no where to be found, and one or more of them would go looking for me.

This was actually a good part for me. I would listen to them walking around and calling my name, and it would reassure me that I existed, and that I was wanted. Keep in mind I was usually the youngest member of the group by several years, and the others felt some sort of responsibility for looking after me.

However, eventually, I would start to realize that things weren't going well. "Street families" tend to fall apart easily. When I noticed things spinning out of control, I would grab as much stuff as I could carry and make my permanent exit. I couldn't stand to say goodbye, so sometimes I would say I was going to visit my parents for the weekend, and then I'd just never go back. Other times my exit wasn't so organized. The entire group would split up, I would choose someone to stick with (usually my "brothers" Shawn and Jonny) and we would end up attaching ourselves to another group.

The thing is, each time, I would tell myself that this was going to be my permanent group. My people. My tribe. I could never seem to think far enough into the future to imagine any of us growing older and finding jobs and homes. I just assumed that, wherever we ended up, we would be together. But... it never worked out. And I am probably lucky for that.

When I met Clara, she was going out with Shawn, and he actually moved in with her immediately. Shawn and Jonny were the two people I had been with for the longest, and it was easy to just include Clara and her son in our already existing family. And for the next eighty million several years, I put a lot of effort into keeping everyone together. I was like an octopus, with each of my arms trying to hang onto someone to keep them from spiraling away from me.

With Shawn, I would beg him to stay, I would ride my bike to all sorts of weird places to search for him, I would scrape him off the ground when I found him and coax him back to somewhere safe. With Jonny, at that point, it was more of a matter of tracking him down at whatever jail or halfway house he was staying at.

But Clara and her son had an apartment. This made them different. No matter what chaos happened in our lives, Clara and her son would always return to the apartment. Clara drank a lot but she did not use drugs, she kept the house clean, and she tried to make sure we had fun things like a Christmas tree in December and Easter egg dying in the spring. Maybe you can imagine why she became my safety person. You can see why I started to feel like I depended on her for stability and a sense of home. She and her baby were like the sun, and we all orbited around her. Except, of course, for when Shawn defied gravity and got sucked into outer space.

And Clara often was nice to me, especially in the beginning. We did have some great times together. I have a lot of good memories with her. When I compared her to my former friends, including Jonny and Shawn, or to having no friends at all, Clara seemed great. Plus, she and her kids were the only ones I managed to hang onto with my octopus arms. Jonny and Shawn both eventually disappeared down the proverbial rabbit hole.

But after reading my last blog entry, and after a good equine therapy session, I started to realize that you shouldn't have to hang onto all of your friends to keep them from flying away. A good friend should want to be with you and spend time with you. A good friend shouldn't constantly make you feel bad and hurt your feelings. They should tell you the truth, if they need to, but in a loving way. A good friend should get joy out of being with you, not feel obligated to look after you, and not just want to keep you around to provide child care and occasional company.

So, to answer the comments that a few of you left, no, I will not be contacting Clara, at least not any time soon. I wish I could see the kids though. But I'm going to keep moving forward in my life, and not keep looking backward.

And maybe, someday, I'll have a real friend!

Wednesday, September 17, 2014

You Look Like You Just Lost Your Best Friend

Warning: Long post! Feel free to skim!

The other day, Kristi from Finding Ninee posted about some friendships she'd had, and lost, over the years. Her post was inspired by the newest Her Stories Project anthology, My Other Ex: Women's True Stories of Losing and Leaving Friends. It is a book of true stories by women, about painful break-ups, not with their boyfriends, girlfriends, partners or spouses, but with their best female friends. When I read about it on Kristi's blog, I went directly to Amazon and bought a copy for my Kindle. Because several years ago, I ended a 10-year-long friendship. It really did feel a lot like a breakup. It wasn't like, "Okay, that person is out of my life." She's still a person I think about every day. She left a hole in my life. The thing is, I am not sure sure that is so bad.

I met Clara when I was 19. At the time, I had been mostly homeless for two years. I had become close friends with a 26-year-old guy named Shawn. I had known him when I was younger, and had been surprised to encounter him in a homeless shelter when I was 18. I thought of him as an older brother. Although I knew he was a heavy drinker and had had drug problems in the past, he was always kind to me, as well as to Jonny, another friend of ours who was my age. Jonny and I were the youngest people at the homeless shelter, and we both had the habit of latching onto older people to help us survive. For some reason, we had both picked Shawn, or he had picked us. When I had gotten worn down by homeless life (I had seen several of my friends develop more severe problems with drugs and alcohol, blow off chances at getting jobs and homes, and have trouble with the law; Jonny was in jail for stealing a car) Shawn had helped me get into an independent living program for homeless girls under age 21. He was staying in the city, but he would often take the train to come visit me on the weekends.

One time Shawn was supposed to come visit me, but he hadn't shown up. I didn't really have a way to contact him, so I waited on pins and needles. Over a week I called all of the area hospitals and the local jails. As of late, he'd been drinking more than ever. I would walk through town and see people I knew, who would approach me to tell me of my brother's latest escapade. He had broken a window, he had stolen a cell phone, he had threatened to shoot someone with a nonexistent gun. He was not allowed here, he was not allowed there, he owed this person a hundred bucks. When Shawn went missing, you assumed the worse.

But finally he resurfaced. He'd been staying with a girl he'd met. She had a toddler son. He wanted me to meet them because he was crazy about them. It turned out the girl was the same age as me, It was hard for me to get used to the idea of that, especially because in many ways she seemed a lot older than me... maybe because I seemed a lot younger than 19. Her little boy was adorable. Soon I was attached to both of them. I was spending weekends at their apartment, I spent Thanksgiving and Christmas with them. By the following spring, I was living with them.

I had three people I lived, under the same roof. To me it felt like a family. But it wasn't ideal. Shawn drank and drank, he and Clara argued constantly, he did stupid stuff. Clara would kick him out. I'd try to go with him. Clara would urge me to stay. He'd come back after a few days, and things would be peaceful... for a moment. I found a full time job at a child care center, and then I'd come home and take care of the baby while Shawn and Clara fought.

One thing I could not stand was fighting. My parents had fought constantly when I was a child, and I had learned to be hypervigilant about sensing the moods of the people around me and trying to keep things smooth. When Clara and Shawn fought, I would often retreat to a quiet spot in the room and withdraw. If one of them yelled at me for something, I would completely wither. I did not (and I still have trouble with this) understand the concept of someone loving you but being angry with you. If I made someone angry, it was like I had burned their house down. If someone snapped at me, it was like they had stabbed me in the heart. I rarely argued back. If I sensed conflict, I would grab my backpack and leave the apartment, to wander the streets for a few hours or days.

Although I'd moved in because of Shawn, he was the one who didn't want me living there. He didn't like how close Clara and I had become or how dependent the baby was on me. I think maybe he didn't want a witness in the apartment. I found out that Shawn was getting violent with Clara. I didn't believe it... how could I believe that about my beloved "big brother"... until I saw it for myself. We developed what was probably somewhat of a trauma bond as we just tried to survive day to day.

In the weirdest chain of events, Jonny, who had gotten out of jail, came to visit us, and he and Clara ended up... well, I guess these days they would call it "hooking up." When Shawn found out, he went ballistic.

Over the next year, the friendship among the four of us was bizarre. Clara got evicted from the apartment. Clara and I both got apartments in a near by complex. Clara ping-ponged back and forth in relationships between Jonny and Shawn. Whenever one of them was involved with Clara, the other one would stay at my apartment. I felt slighted by every single one of them. Shawn and Jonny were my brothers, and Clara was my best friend. But to them, their romantic-slash-sexual relationship was far more important than a friendship with me. I was only there to help hold them together when things went wrong. During times when neither Jonny nor Shawn were around, Clara and I were as thick as thieves. We spent all of our spare time together, with me helping to take care of her son, whom I referred to as my nephew. But whenever one of the guys came around, I was brushed to the side.

Eventually Jonny and Clara got married. For me, the years when Jonny and Clara were married were not too bad at all. I had lost my apartment by then, and I spent most of my weekends with them, as well as living with them for a while when I found myself between homes. Like Shawn, Jonny didn't always want me around disrupting his little family... especially because he, too, drank too much, used drugs, and sometimes got violent with Clara. My presence screwed up the picture-perfect image he tried to portray to the outside world. But Jonny was the same age as me. I had looked up to Shawn, and I even looked up to Clara, but I considered Jonny my equal. If he yelled at me, I didn't melt away... I just yelled back. We could be scrapping one minute, and then be friends again the next. I would holler at him to stop hitting Clara, and to stop drinking. He would shout at me to mind my own business. We would slump on the couch and drink Dr. Pepper together and talk like buddies. We understood some things that Clara never would, like how it felt to sleep outside, and why that could sometimes be fun (we both loved camping... Clara, not so much) and the benefits of buying groceries at Wal-Mart or Aldis (Clara thought these stores would give us roaches and food poisoning) and how to survive just about anything.

On the other hand, I felt like Clara understood me like nobody else on Earth. I guess she sort of somewhat didn't. She didn't really believe that I had ADHD or Aspergers... she accused me of just "acting that way" to get attention. But even if that was what she thought, she accepted me wholly. Together, we could find humor in anything... from the trials of raising children (she now had an infant girl as well) to Jonny's drunken antics, to the traumatic memories from our past. So many times we would both be laughing so hard, tears would run down our faces. When I was facing hard times, going through anxiety or depression or just freaking out about something, Clara was the only one who could help me to calm down.

Usually we were hanging out as a "family." At least one of the children were always with us, and sometimes Jonny. So we didn't often get to do the ordinary things that women do with their friends, like go out for dinner or see movies or, I don't know, whatever girls do. When we went shopping, it was for kids' clothes and household products. When we ate out, it was McDonald's or Chuck E. Cheese. When we saw movies, they were Pixar.

Sometimes we had a ton of fun together. One time, we rented a hotel room near the local Six Flags part, and spent two days straight riding roller coasters. We often went to church together on Sunday mornings. It was annoying to watch Clara and Jonny talk to all of their church friends about their perfect little family, omitting the part where Jonny smoked rock and punched Clara, but at least we were doing things together! I even spent holidays with them. Most Christmas Eves I would spend part of the night at Jonny's parents house with him, then go back home with Jonny and Clara to do traditional Christmas Eve stuff with the kids, stay up late and help them wrap presents and stuff, wake up early in the morning for a present-opening session with the kids, and then go to my parents' house to have Christmas there. Thanksgivings and Easters, even Mother's Day, I often spent with Clara's family.

With both Clara and Jonny, they seemed to like me better when they were fighting. Clara would spend more time hanging out and having fun with me when she was fighting with Jonny. And when Clara was at work, Jonny would come to me to complain about Clara. I walked the fine line of trying to be both of their friend, trying to empathize with both of them without driving them further apart.

Time went on. Jonny's violence grew more frequent, and more severe. Clara's son was now old enough to understand what was going on. One time, as Jonny threatened her with a knife, her son screamed and begged me to call the cops. I did it. When a terrified 6-year-old begs you to call the cops on his father, you know things are bad. Holding a howling infant in one arm, and trying to coral the 6-year-old in the safety of the bedroom, I called 9-1-1 and breathlessly told them our address.

And when I told Clara what I had done (Jonny had stormed out by this time, leaving her in a sobbing heap on the floor with her son trying to comfort her) she screamed at me that I had ruined her family. "You don't understand! Your parents are still married! Your father never went to jail!" she snapped. To her, a father who was in your house trying to kill your mother was better than no father in your house at all.

But that is not when our friendship ended. Clara forgave me. Even Jonny forgave me. And life proceeded as usual.

Clara had kicked Jonny out of the house many times, but they'd always gotten back together. Eventually, shortly after that incident, they broke up again, and this time Clara swore it was for good. She allowed him to stay at the house for days at a time in order to visit the children, because he didn't have a place of his own to bring them to. During these days, Jonny spent a lot of time vying for Clara's affection. I thought for sure they'd get back together.

But then, in yet another twist of events, Clara got pregnant. By another guy.

At first, Clara was going to have an abortion. I took the day off of work and showed up at her house early one morning in order to take her. I had mixed feelings about this... I hated the idea of abortions... but I knew it was Clara's choice alone. When I got to her house, Clara was having second thoughts. It was one of those decisions that effects every aspect of your life. Choose one, and the rest of your life will be completely different from if you had chosen the other. Clara wasn't sure she could raise a third child, especially now as a single parent. But she wasn't ready to shut the door on the possibility of who or what that child would be. She hemmed and hawed. She would be all alone. It would not be fair to her other kids. But the father of this child didn't have any other children, and this may have been his only chance. (He was older than us.) And what if she had aborted her oldest child, as people back then had urged her to do? She couldn't imagine life without him. What would life with this new one be like?

I told her that I would love any child she had, and that I would do whatever I could to help out, as I always had. "But you are the only one who can decide. Nobody else can tell you what to do," I said. In the end, she decided not to go through with the abortion.

Looking back, this was probably the beginning of the end. NOT specifically because of the baby. That baby would become the sunshine of my life. But because of the baby's father.

Steve was the kind of guy who attracted attention wherever he went. When he was a good mood, he had a ton of charisma. When I first met him, I thought he was amazing. He was, outwardly, kind to Clara's other children, as well as to the baby. He was, outwardly, kind to me.

It is very hard to explain Steve. I am still not sure what kind of person he was. He was like salt and pepper and sugar and vinegar all mixed into the same bottle. He was the kind of person who would offer to do you a favor, smile warmly and tell you it was no problem, and then behind your back complain endlessly about how he had to waste his time doing this stupid thing for you that you should be able to do for yourself. And then, when he saw you, he'd be smiling again.

Clara and Steve had arranged a complicated babysitting situation for the baby and Clara's second-youngest child, with the two of them going to one place on certain days, another places on other days, and two separate places on still other days. I was going to school full time and I was having difficulty with my part-time job. Steve told Clara that, if I watched the children during the three days a week that I wasn't in classes, he would pay me $300 a week. When Clara rationalized that they could pay for a day care center if they were paying that much, he said, "But Angel is family. Angel is quality goods." When Clara told me that, I decided I'd be the best nanny ever and keep the children stimulated and happy and learning at all times. And even though, by the time I started watching them, the amount of money had been downgraded to $200 a week, I put my heart and soul into caring for the children. The second-youngest was no longer in preschool, because they couldn't afford that in addition to child care costs. I was studying to be a teacher, and I had worked in child care centers before. I used my skills to create fun "lesson plans" for her. (The baby was still too young to do much of anything but ride around with me in a B'journ.) I did research to find free activities all over the community. I joined Meetup and signed us up for play groups. The walls became covered from the art projects we created. The kitchen was often messy from our science projects, which sometimes went awry. The kids' clothes were often dirty by the end of the day. I felt that this meant I was doing a good job. When Clara and Steve began to complain that the house was too messy when they got home, I dedicated the last two hours of each day to cleaning the entire house... not only cleaning up after our projects, but doing the dishes, sweeping the floor, vacuuming, etc.

At the time, I was watching the kids until when Clara got home, on the three days that I watched the kids. The plan was that I'd then go home, and spend the rest of the day studying and doing homework, since I had classes the other two days. But Steve would often invite me to stay for dinner... and then he'd suggest that I spend the night. And then he'd say, as long as I was spending the night, would I mind watching the children so he and Clara could go out to the bar? I usually said yes, because I wanted to make Steve and Clara happy. I wanted to be needed, to be part of the new little family that they were putting together. With Jonny and Shawn, I had usually felt like part of the group, although I knew they preferred the company of Clara, and she them. With Steve I didn't have that built-in sense of belonging. I had to work for it. So, after a full day of putting all of my energy into caring for the children, I would watch them for a few more hours after dinner, and put them to bed. I would fall asleep without studying, and then get up in the morning and go to class. My grades began to fail.

Sometimes Steve made plans for me to watch the children at night, without even checking with me. I watched the children on Saint Patrick's Day. I loved holidays, and I had made a huge deal of it at home with the kids, with a leprechaun house and a treasure hunt and everything. Steve came home and asked me if I wanted to spend the night, as they all would be having a special Saint Patrick's Day dinner that night, complete with green mashed potatoes and Green River soda. Of course I said yes! So I was surprised, that night, when Clara didn't come home for dinner. Steve prepared the obligatory dinner, and served it to the children and I. He did not eat with us. When I asked him where Clara was, he said she was working late. Then, after dinner, he got his coat on and got ready to leave. "Where are you going?" I asked in confusion. He told me, "I'm going to meet Clara for a few drinks."

I was so hurt, I could hardly think straight. I sat on the couch, trying not to cry, as the kids ran amok in the house.

The next day, when I told Clara I had been surprised that she didn't come home for dinner, she told me Steve had called her from the house and said that I was going to watch the children. He'd suggested she just meet him at the bar directly from work. She had no idea that Steve had never actually asked me to watch the kids, or that he'd implied that we'd all be spending the evening together!

Another time, on Steve's birthday, some of Clara's family members came over to celebrate with us. I had planned to stay for the celebration, but I was going to go home that night and do some much-needed homework. So after our dinner and cake, when Clara's family members got up to leave, I got up to leave too. Clara looked angry, and barely said goodbye to me. She acted cold with me the next time I came to watch the children, as well. When I finally asked her why, she said she was "disheartened" that I had bailed out on watching the children on the evening of Steve's birthday, because the two of them had had plans to go out. Stunned, I told her that I had no idea they wanted me to watch the children.

Things like this happened frequently. Soon, it was just assumed that I would spend the night on the days that I watched the kids, so that Clara and Steve could go out. Night after night, I watched them go out, while I stayed at home, alone except for the little ones. On my birthday, as a special treat, they  got another babysitter and let me come out with them for one hour, but then they had to return me back to the house, to my rightful duty of caring for the kids.

I was sad. I was angry. I actually started to complain. "When I first started saying I'd spend the night, it was because I thought we could all hang out," I told Clara. "I don't mind helping out with the kids in the evenings, but I don't want to stay and take care of them all by myself every single time! I might as well just go home at night. But if I went home at night, then you'd stay home and hang out. So why couldn't you stay home and hang out with me sometimes? It is like, every time I'm here, you guys automatically don't be here."

"Well, when am I supposed to date him?" Clara asked. But for a while, they started hanging out at home more often.

Then Steve lost his job. He could no longer pay me to watch the children. I offered to continue watching the kids for free, for a while, so Steve could look for a job. My rationalization was that, in the time it would take me to find another job that worked with my school schedule, Steve might actually get a new job. Besides, I loved the kids. I loved being part of their every day lives. And I still clung to the dumb idea that Clara and the kids, and now Steve, were my family.

A new job for Steve did not materialize. Instead, Steve found a friend of his whose son, the same age as Clara's middle child, needed a babysitter for the summer and for after school. She would pay me $75 a week to watch the little boy, at Clara's and Steve's house. This way I could continue watching the kids, and make a little money.

Now I was watching three and sometimes four children (Clara's oldest didn't need so much direct supervision anymore) full time, for $75 a week. In addition, I sometimes watched Steve's young niece for free. I used much of the $75 from the new little boy's mom on activities for all of the children. Although we mostly went to free places, it took a lot of gas, and since there was often not much food in the house, I often bought them all snacks or lunches as well. I didn't take classes that summer. Because I had to watch the new little boy every day, I couldn't go home at all during the week either. By the end of summer, I was living full time at Clara's house.

Clara began to feel crowded by having me around all the time. She especially hated that I had developed a close friendship with her  other family members, including her mother and sisters. She began to make plans with her entire family, and not tell me about it... awkward when I was living at their house and they all collectively left without me to go somewhere. I remember one day I came home to an empty house. I remembered that Clara and Steve had been talking about going to Clara's mom's house for the day, and I had somehow assumed I was going too. I called Clara's cell phone to ask where she was, imagining that she would tell me to meet them over there. But she didn't answer. I called several more times, leaving more and more frantic messages, like the codependent person I was. When she still didn't answer, I tried Steve's phone, then Clara's mother's phone, and then her sisters' phones.

Finally Clara called me back. When I picked up the phone, she snapped, "Why are you blowing up everyone's phones?"

I replied tearfully that I had come home, found the house empty, and was just wondering where everyone was and whether we were going to do anything that day.

"Obviously, since you called my mom and sisters, you know we're over here," said Clara. "And if you were invited, someone would have told you, right?"

My heart sank. "Okay," I said. "I'm sorry."

"You can't expect to be with me all the time. This was just supposed to be a job, and you turned it into so much more. Sometimes I just want to be with my family!"

"Okay," I said again. I hung up. Then I bawled harder than I had in years.

When Clara and Steve and the kids came home, Clara acted like nothing had happened. Later, she sort of apologized. "But you have to understand, Angel, we can't have the same kind of friendship that we had when we were 19. I have a boyfriend and children now."

I understood the general concept, sort of. I didn't have a boyfriend or children, so it was hard for me to understand that, once a person had those things, nobody else was as important. It was hard to think about that, since I didn't have these things, there was nobody in the world who would ever consider me so important. I knew I was too clingy of a friend. I always wanted more. I was so desperate to belong somewhere, if I could have been legally adopted as one of Clara's kids I probably would have. At the same time, though... Clara had also had a boyfriend and children when I met her, and the whole time that we'd been friends. Why was it supposed to be different now?

By fall, my day looked like this. I would get up early, help get Clara's kids ready for the day, intercept the other boy when he got dropped off, take the other boy to school, come home, do activities with the youngest kid (who was now a toddler) until 3, go pick up the new boy and the middle kid (they were in the same grade but went to different schools, which both got out at the same time, so this was a daily stressful challenge to try to be at two places at once. Usually I would try to get there a little early to pick up the boy, and I'd have Clara's daughter wait in front of the school until I got there, picking her up 10 minutes later than I was supposed to. Sometimes it would take longer, depending on when the boy's teacher let him out of class and how much he dawdled in the hallway. The school complained about this to Clara, who complained about it to me. So I tried the opposite... I rushed to pick up Clara's daughter as early as I could, and then scurried to get the boy. But the school complained to his mother, who said to me, "That is not going to fly.") After I had somehow accumulated both of the first graders, we would go to the park for a while... my only chance to sit down and rest my brain for a while. Then I'd take them home. The boy's mother had complained that she didn't have time to do his homework with him after work, and asked that I have him do it there, which meant that I had to get both first graders to sit at the table and do their homework. This required a lot of monitoring, helping, and bribery. During this time I also had to watch the youngest child (I usually gave her a coloring book and told her it was her homework) and clean the entire house, including a mammoth sized pile of dishes. Sometimes I'd have free time in the evenings, until Clara complained that, as a member of the household, I still needed to help out with the children even once she and Steve were home.

I was a very stressed person. In addition, I hadn't signed up for classes for that semester. I just didn't have time for school, being up to my elbows in children!

Then Clara started saying that she was stressed out because I had ruined the children.

Clara's point was that, before I had started watching the kids, the youngest one had been content to just sit quietly in a bouncy seat all evening long. She had been a very low-maintenance baby. But since I'd been around, her personality had exploded, and she'd turned into an extremely energetic, constantly talking, and often whining and demanding, toddler. I had spoiled her by spending too much time with her. The other kids were ruined to. The middle child had gotten a -2 on her spelling test, so I must not be doing a great job helping her with her homework, and the oldest child had been disrespectful lately.

I was crushed. And I was starting to lose my mind.

Whenever Clara got mad at me for something, she'd threaten to kick me out. Then Steve would promise that he wouldn't let that happen. Steve liked to try to be my saviour. But then he'd talk to Clara, behind my back, about wanting me to leave.

Oh yeah, and I almost forgot to mention about the dogs. Clara had a dog. The summer that the baby had been born, she'd gotten her oldest son a second dog, which was meant to be his alone. It was a sort of "sorry we're in kind of a mess" gift. Now she had a boy dog and a girl dog, neither one of whom was altered. And do you know what happened next? Yeah.

Clara and Steve had never liked the boy dog because he barked a lot and wasn't house trained. So they had made Clara's son give the dog to his friend. And if you know how much I love animals, you know I had loved the hell out of that dog. He was a very anxious dog who never adjusted to the chaos of the household, and he'd gotten very attached to me. But he wasn't my dog. So I couldn't do anything when Steve and Clara (and even their kids) spanked him repeatedly for going to the bathroom in the house, and locked him in the backyard or in his cage all day long. He would be in his cage crying and yelping. I would try to stay away from home as much as I could on those days, because I felt like it would be easier for the dog if he didn't have to hear and smell me but not get to be near me. When they gave him away, I cried like my heart was broken. Even knowing the dog would be happier in his new home, where the family would cherish him, I cried because I knew he would miss me, and I would miss him.

The girl dog had puppies. Clara and Steve gave away all but one. They let the oldest boy choose one to keep for himself. He chose a little brownish-yellow puppy with a pink nose. He was going to sleep with the puppy, take care of it, and train it. But being a 12-year-old boy, he did not do many of those things. At night he would bring the puppy to me to sleep with, saying she was moving around too much. This new puppy was a lot like her father, because she barked a lot and peed on the floor a lot. And I was head over heels in love with this tiny pup. I fed her, slept with her, and took care of her. I tried to potty train her, but she still stubbornly went to the bathroom in the house. She also fought with her mother dog. One night when Steve and Clara came home late from the bar, while the kids were already sleeping, Clara screamed at her and kicked the cage until the puppy yelped. Whenever she went to the bathroom in the house, barked too much,  or fought with the other dog, Clara and Steve would spank her, scream at her, and lock her in the cage. They threatened to get rid of her. Clara put notices on Facebook asking if anyone wanted the little dog. They made definite plans to take her to the pound. It tortured me. I would hold this little pup... now the happiest thing in my life... and weep. I couldn't lose another one.

One day, Clara and Steve had set a definite day to drop the puppy off at the pound. And the day before that, they went to the pet store and got ANOTHER DOG! It was like rubbing salt in my wounds, getting a new dog, while the dog he was replacing was still here! But at the last minute, Clara gave me the best gift ever. She told me that I could keep the little pink-nosed puppy.

I moved out shortly thereafter. I took the little puppy back to my parents' house. Amazingly, she very quickly became potty trained, and stopped barking so much.

Meanwhile, I drove each day back to Clara's house to care for all of the children. But I had started to become detached. I was really just doing this because I loved the kids. I had given up on ever finding any sort of peace with Clara or Steve. I would never be more than a babysitter to them. To the children I was an auntie, and even a second mother. But to Clara and Steve, I was nothing. A babysitter. A clingy babysitter who wanted to be a friend and wouldn't take no for an answer.

I had been living with them and watching the kids for several years now. I had stopped going to school. I only had a few more classes to go before I was eligible for student teaching. I decided I had to start moving my life forward. I told Clara and Steve that I was going to be going back to school full time and wouldn't be able to babysit anymore. They were fine with it. They seemed to understand. Besides, I told them, I could still come watch the kids on an as-needed basis. And (I hoped) maybe if I wasn't living there, we could actually hang out and have fun when I did come over.

All was going well. I watched the children until after the first few days of winter vacation. That was to be my last week. But we talked about hopefully seeing each other before Christmas.

My brother, who lived in another state, was going to be coming into town the day before Christmas Eve. My parents planned on our going out to dinner together as soon as we picked him up from the air port. That morning, Steve called and asked if I would come over and watch the kids while he and Clara did some Christmas shopping, and then I could spend the night there too. I explained that I could not spend the night, because my brother was coming, and that we were going out to dinner with him. It was important to my parents that I was there for that. But, I said, I could come over for a few hours. He told me to come over at 3.

Assuming Clara had gotten off of work early so they could go Christmas shopping, I headed to their house. But Clara was at work, and only Steve was home. The kids were running amok. I did some Christmas-themed crafts with the kids, that I had brought over. I waited for Steve to leave. He didn't. I asked him when Clara would be home. He said he didn't know. I reminded him that I had to go to my parents' for dinner. He said he remembered.

It was nearing six when my mom called. They'd gotten my brother from the airport. He was hungry. They wanted to go out to dinner as soon as possible. When would I be coming?

"I don't know. They haven't even gone shopping yet. Clara hasn't even gotten home from work yet," I said. I was talking a little defensively, because I was feeling trapped between Steve's expectations and those of my parents. My mom  urged me to come home as soon as I could.

When I hung up, Steve told me, "Just go. If it is important to your mom, just go. I don't want you to get in trouble." He seemed a little irritated. I didn't know what to do. I went. As I drove away, my phone rang again, and Clara's name came up on my caller ID. I didn't answer it. I could almost guarantee Steve had called her to tell her I wasn't going to watch the kids, and she was calling to bitch me out. I had to be done with this.

The day after Christmas, Steve called. Years ago, I had gotten library cards for the two youngest children, plus the other boy I babysat. They were under my name. I'd gotten them so the children could attend story times and other special events at the library. It wasn't enough for an adult to have a card... at that library, each child, even infants, had to have their own. Because of the chaos of our daily lives, each of the children, and I, had some seriously overdue books. The library had sent notices to Steve and Clara's house, addressed "To the parents of" each child. Steve was angry. He told me that I had better pay the library fee, because otherwise the fee would go on his credit. Although I tried to explain that, as far as the library was concerned, I was responsible for the children, because their cards were under my name, He wanted me to go to the library immediately and pay. And the thing was, I didn't have the money just then. Did he not remember I'd been making $75 a week for years? I had spent most of my tiny savings on Christmas gifts.

Clara began to call. I didn't answer. She left scathing messages on my voicemail. I listened to the first one until I heard the sentence, "Obviously our friendship was over." The rest of them, I deleted without listening to.

Things got a little immature at this point.

I had posted pictures of the children on Facebook, from our last week together. Clara and Steve left comments implying that I had "quit without notice." I posted a status saying, if anyone on my friends list didn't actually want to be my friend, they should just defriend me instead of posting things about me. They defriended me immediately. Then Jonny called to let me know that Clara and Steve had posted their own statuses telling everyone that I owed them a lot of money and refused to pay, and that they were no longer friends with me. They were urging our mutual friends to unfriend me. Jonny told me he had defended me, pointing out that I had cared for their children for years for free. Clara had shot back that they had paid me with room and board. (Except for a few months when I'd slept in a spare bedroom, until it had been decided that the oldest child's friend could move in and have that room, I'd slept on couches... and if one of the children felt like sleeping on the couch, I had been demoted to the floor. And I'd signed up for food stamps, and contributed every bit of them to feed the children.)

I blocked Clara and Steve from my Facebook. Many of our mutual friends unfriended me. A few actually double-crossed me by staying friends on Facebook, pretending to be my friend, and then showing my Facebook page to Clara or reporting to her things that I'd posted. (I never posted anything about her or having to do with her again, so it wasn't like I was posting mean things about her and her friends were telling her. It was just random bits of information about my life.)

For a while Jonny begged me to try to be friends with Clara again, for the children's sake. I could still see the kids, he reasoned. I could not walk out of their lives, after all this. He actually organized a few phone calls between the children and me.

But I could not picture ever going back to that house.

I knew a lot of it had been my fault. I had wanted too much, given too much, and accepted too little in return. I had acted like a pathetic, desperate person who only deserved the minimum, and I had been treated as such. I had kept on hoping for a sense of belonging and family that Clara was unwilling to give. I had let myself get worn down to the point of nothing. I was like a dull, broken crayon with the wrapper scraped off. I knew I had to get stronger and learn to be comfortable with myself, without needing someone else so bad. I needed to learn how to be a good friend, without actually crawling inside the person's skin and living their life with them. I needed my own life. I needed to expect friendships that went two ways, where the person would come to my house sometimes, where we would occasionally do things I liked to do, and where one of us was not responsible for cleaning the other's house and caring for their children.

To this day (it has been three years, eight months, and two weeks since I've spoken to any of them) I miss Clara and the kids. I miss the children fiercely. I raised the baby from the time she was an infant, to the time she was almost four. I taught her to love books and to love doing art projects. I taught her the ABC's, numbers, shapes and letters. I spent every minute of my life on that baby, more than I did on the other children, because they were in school a lot of the time. We had a rhythm together. I would take her grocery shopping with me and I would amuse her with playful arguing, bantering back and forth about why she couldn't have candy for lunch or why she thought Elmo was boring now. Strangers commented on how close we seemed. I had special relationships with each one of the kids, including the little boy I watched after school... but I feel like the baby was the one whom I raised the most.

I even miss Jonny. He and I talked on the phone a few times, and we stayed Facebook friends for a while. But he is married and has another baby now, and his wife made him cut off ties from me... from his "past."

And Clara... I miss laughing with her. I miss talking to her for hours on the phone. I miss how dumb little outings, like going shopping at Target, became misadventures that we'd talk about for weeks. I miss how we'd both sit on the couch reading for hours, tuning out the chaos around us. We often traded books. I miss going to movies together (when she was married to Jonny, on the rare occasion he'd watch the children while we went out, something we never did again once Steve was around) and then talking about how they made us feel. But I don't miss always trying to make her happy, worrying that she'd be mad at me, worrying that she'd take something I said the wrong way and give me the silent treatment.

I hope someday I am strong enough to be her friend again. There are so many times when I've wanted to email her or call her... but I am afraid. One part of me is afraid  that she will still hate me, and that I will be hurt. But the other part is afraid that she will forgive me completely, and things will go back to exactly the way they were before. I am afraid of becoming that clingy, needy person again. I am afraid of letting myself disappear again. I need to be stronger. Someday...

Clara, if you ever read this somehow, you will always be in my heart!

Sunday, September 14, 2014

Yellow Ribbon

I had an interesting weekend. I sometimes work for companies that provide child care at conferences. For instance, sometimes there are conferences for parents of children with a certain illness or disability, where the parents go to different educational sessions during the day and then maybe special family events in the evening. While the parents are in sessions, we would be the ones taking care of all of the children.

I don't always like working at these conferences because the days are really long, and the pay is not much. Also it sort of irritates me that many of the companies, when bidding for the contract to provide child care for the conference, will promise a structured program with games, music and movement, and more. One brochure put out by such a company offers different themed days. A cowboy-themed day is supposed to have a schedule that consists of crafts, face painting, and hunting for gold in the morning, followed by story time, games, and bubbles in the afternoon.
In reality, there will be a bunch of battered board games with missing pieces set out, along with some old, broken Dollar Tree crayons and dried out markers, and a zillion sets of crafts from Oriental Trading Co, mostly involving putting foam stickers on various objects. It is pretty much just all set out for kids to use when they want to, and they just run amok all day with no actual schedule or structure. There are no organized games, story times, or anything else, unless the child care workers come up with something on a whim. Which is fine... I mean, the kids are safe, and they always seem to have fun... but it just isn't what is advertised, and that always bugs me when people advertise one thing and then do another, especially in child care settings. But that is just my vent, which I had to get out of my system! Moving on...

This weekend I worked at a conference for members of the military and their families. The purpose was to help families cope with deployment and returning from deployment. It was pretty cool because the conference actually provided a lot of activities for the kids. For instance, a guy dressed in 1940's era army clothing came in and showed the kids all of the different things he carried with him, such as his helmet, which could also double as a bucket or shovel, and his mess kit, and he let some of the kids try the camouflage face paint.  (Fun fact: If you are ever trying to emulate that look for a costume or whatever, we learned that there are two shades of green, one darker and one lighter. The dark paint goes on hard areas of your face such as your chin, nose, cheekbones, and forehead. The lighter stuff goes on the squishier parts of your face. I'm not sure if it is still done that way now, though, because on Google images you can see people wearing it in all sorts of random patterns, including stripes. Kinda odd. But again, I digress...)

There also was a counselor who spent part of every day with us and did some therapeutic activities for the kids, about understanding their feelings when their parents are deployed for long amounts of time. This part was kind of sad. I was working in the room for kids between the ages of 2 and 6. Several of them had a parent who is deployed right now. A few actually had two deployed parents, and they were living with relatives. All of them had experienced their parent being deployed in the recent past... some parents had just come home. The kids would say things about missing their parents, and wondering why their parents had to go so far away and be gone for so long. And there were really no good answers for them. There was a puppet show with a message along the lines of, "Your parents are doing an important job, so please stop complaining and just help us out here!" Okay, it didn't literally say that. But it was about understanding that your parents are doing a very important job, and trying to look on the positive side by, for instance, complaining less and helping out more.

There was also a story about how parents might come home with severe injuries, such as a part of their face or one of their arms and legs missing, and that they were still the same people as before and that they still loved their children just as much.

It is hard for me to understand how or why parents would want to be in the military. And I am not saying this, like, in a judgey way. I have a lot of respect for anyone who would be brave enough to be in the military, and I feel like military parents are making a huge sacrifice by missing out on time with their kids, in order to help make the world safer for those same kids. If there was a monster standing outside trying to get into your house, would you go out and fight the monster to protect your kids, even if it meant you might die in the process? Or stay home and stay as close to them as possible, trying to protect them that way? It is a difficult choice. I literally wonder how parents find the strength to do it, and how their children and other family members find the strength to cope with it.

The moral of this story is, I had a great time this weekend. (Even though yesterday I was still recovering from my wicked cold, and I ended up coming home at the end of the day and collapsing and sleeping for almost 11 hours straight.) The kids were so sweet... they loved meeting new friends and playing together, and they randomly gave different staff members some of the crafts they made (I got a wooden snake!) and were full of hugs and smiles. Little kids are the kinds of people who will genuinely love you on the first day that they meet you, even if they will never see you again after that weekend. And it is pretty easy to love them back.

I also have a new found respect for members in the military and their families. I mean, I always did have respect for them, but it is one thing to think it in sort of a universal, hypothetical way, and another thing to actually meet people who are going through it. I sometimes think of members of the military the way I think of celebrities. You see them on TV and read about them, but they aren't exactly real people, not in the way that your own friends and family members and neighbors are real. But meeting some made me realize that they are real, and they're not superheroes... I mean, they are heroes, but they are human beings with feelings and pain and families, and they have chosen to do this with their lives. It is admirable.

Whenever you see someone in the military you're supposed to go up and thank them for their service. I didn't do that because it seemed a little awkward, considering that basically every single person in the place was in the military. But for real, if you're in the military, or you have a family member who is, and you're reading this... thank you for your service!

OK that is all. I really need to start coming up with snappier endings for these posts. Goodbye.

Monday, September 8, 2014

Invisible Illness Week

 I am blogging for Invisible Illness Awareness Week!

Sometimes I wonder if you guys get tired of me complaining about all of my disorders and illnesses and what have you. But one of the reasons I started this blog was so that I could help others understand these things, and so that I could meet others who might understand me. So I hope you are not sick of hearing about it!

When most people talk about invisible illnesses, they are talking about physical illnesses such as Chronic Fatigue Syndrome, Fibromyalgia, Diabetes, Lupus, or migraines. However, mental illness is also considered an invisible illness.

An invisible illness is a concept similar to an invisible disability. Basically, it is a chronic illness that a person has, that you cannot tell by looking at them. Also, the person might seem and act perfectly healthy one day, and then claim to be in pain or feel ill the next day. Sometimes people with invisible illnesses are accused of making it up, imagining things, trying to get attention, making excuses to get out of things, etc. But the truth is, you cannot see a person's pain just by looking at them. Also, many people with chronic illnesses can feel awful one day, and feel comparatively much better the next, and then awful again the next day. This is also true for mental illness. Just because a person is smiling and acting happy right now, does not mean that they don't live with depression.

At any rate, the Invisible Illness Awareness Week has a meme called 30 Things, in which you answer 30 questions about your illness. I though I would do it. Mine is a little different in some parts, because I've had depression and anxiety since early childhood, whereas some others only started getting illnesses later in life, and therefore had to give up things that they could do when they were healthy. Well... Here you go.

30 Things About My Invisible Illness You May Not Know

1. The illnesses I live with is: Depression, anxiety (and also allergies and anemia.)
2. I was diagnosed with it in the year: 1999 
3. But I had symptoms since: I was a small child. 
4. The biggest adjustment I’ve had to make is: my expectations of what I'd be able to do with my life. When I was a kid, I definitely didn't think I'd grow up to be where I am now. I had high hopes for my life. I've had to readjust my plans and realize that these things might just take me a little longer than I thought. 
5.. Most people assume: I am just trying to get attention, or I am just childish.
6. The hardest part about mornings are: Convincing myself to get out of bed. I often feel like I don't really have anything to live for or any reason to wake up. This is why having a dog is good for me. She will happily stay in bed all day with me, but I know she needs to use the bathroom and get some exercise, so I get up because of her. 
7. My favorite medical TV show is: It used to be ER but I haven't seen it in a long time. And also that one that used to be on Lifetime. What was that? Was that ER? Hmm. 
8. A gadget I couldn’t live without is: my Kindle because I love to read!
9. The hardest part about nights are: sometimes having insomnia. Sometimes just being restless, and other times because of anxiety. Lying quietly gives my nervous thoughts time to jump around and get noisy!
10. Each day I take 6 pills & vitamins. (No comments, please) <--- I didn't write that... it is part of the meme, 
11. Regarding alternative treatments I: would be open to them. I'd probably want to start trying them while still on my regular medication, and if it seemed to help me, I might slowly reduce my regular medication. 
12. If I had to choose between an invisible illness or visible I would choose: I don't know. I think I would still choose an invisible illness, because I'm used to it by now, and having something else would feel weird. 
13. Regarding working and career: I want to work. I feel at my best when I am working, because I am busy, and I am doing something that I consider important. But sometimes my anxiety and depression prevents me from actually going to work. I get a little agoraphobic. This has actually caused me to quit several jobs with little or no notice, because my anxiety built up to the point where I could not stand another day... even though when I was actually at work, I was okay. That is sort of confusing, I know. 
14. People would be surprised to know: I am intelligent, I am resourceful, and when I am healthy I am brave and independent. I'm not trying to brag. I am not saying I am more intelligent than most other people. I'm saying, people often talk to me like I am a small child. Or they talk to each other in front of me, as if I am not there, because they think I won't understand. I have actually learned a lot in life that way, because people don't hide things from me that they would hide from others. 
15. The hardest thing to accept about my new reality has been: This has been my reality most of my life, so it isn't new. I guess the hardest part of knowing I have it is accepting that I will probably have it for the rest of my life, I will probably have to be on medication for the rest of my life. I am not going to wake up one day and feel "normal." When I was a kid I used to think, when I became a teenager I would be just like other people. Then when I was a teenager, I thought it would happen once I was twenty-one. In my twenties, I thought it would happen when I turned thirty. Now I realize... this is just how my brain is, and it isn't going to change. 
16. Something I never thought I could do with my illness that I did was: learn to drive. I didn't learn to drive in high school. I couldn't handle all of the different stimuli coming at me at once when I drove. That was probably more because of ADHD and Aspergers though. When I was 22, I finally learned to drive, because I was moving to a small town that didn't have very good public transportation. My dad taught me how to drive well enough to pass the test and get my license. I taught myself the rest of the way just by driving around on long, empty roads in that small town. 
17. The commercials about my illness: claim that if I take medication I will be running around smiling and flying kites and stuff. 
18. Something I really miss doing since I was diagnosed is: This doesn't really apply to me since I have always had it. 

19. It was really hard to have to give up: This doesn't really apply to me since I have always had it. 

20. A new hobby I have taken up since my diagnosis is: That still doesn't really apply, but I guess it led to my blogging!
21. If I could have one day of feeling normal I would: move to Oregon really quick, before my anxiety and depression caught up with me. 

22. My illness has taught me: that my family will do anything for me. 

23. Want to know a secret? One thing people say that gets under my skin is: that depression is not real, that it is just an excuse for people who don't want to deal with life. That "everyone" is depressed these days. That being on medication dumbs me down. That I should just "pull myself up by my bootstraps." (Do boots even have straps?) That I am bringing everyone else down. Sorry, that is more than one thing. 

24. But I love it when people: just talk to me, keep me company, keep me from having to be alone, and convince me to go out and do things with them. 

25. My favorite motto, scripture, quote that gets me through tough times is: Uh... I'll have to find one some day I guess. 

26. When someone is diagnosed I’d like to tell them: If you are on medication, don't stop taking it just because you feel better. I've done that so many times, and it just leads to a huge unexpected episode at an inconvenient time. Also, explore all different kinds of therapies. I do equine therapy, and I love it. I want to do art therapy. There are many other options besides just sitting in an office and talking to someone. 

27. Something that has surprised me about living with an illness is: it is just my normal life. It usually isn't unbearable. Even though I hate this expression, it just is what it is. 

28. The nicest thing someone did for me when I wasn’t feeling well was: Hmm, I don't think anyone actually ever did something specific for me. My aunt when she forgave me and still  kept talking to me after I bailed out on moving to Oregon. My parents when they forgave me and helped me after I bailed on going away to college years earlier. I guess just tolerating me. 

29. I’m involved with Invisible Illness Week because: I like to help people understand. 

30. The fact that you read this list makes me feel: HAPPY! 
Okay. That is it. I actually have a visible illness right now, as well... an annoying cold... so I am going to go to bed early. Goodnight! 

Saturday, September 6, 2014

Lights Out!

I haven't been working at all since my whole E-Town disaster. I really, really, really was hoping to not have to sub again this school year. But last week an easy job came up on my computer... subbing as an assistant in an early childhood program... so I decided to take it. Friday was the only day last week that I worked. By coincidence, my mom happened to be working at home that day!
The job I was at was a few towns away from where I live. Towards the end of the school day, there was a thunder storm. It was pretty short, and by the time I left, even the rain had stopped. 
So I was driving home, and first of all the highway was really trafficky. It isn't usually that bad so early in the day. (I left work at 3:30.) I got off one exit sooner than usual, just to get out of the traffic. And at that exit, the traffic light was out. That was my next clue that things were weird.
As I drove through my town, I was noticing a ton of branches and debris all over the place. Then, I made the turn into my neighborhood. And everywhere I looked, were scenes like this. 

I mean, everywhere!  Some people had entire trees land on their roofs! Some streets were completely blocked by fallen trees! I started wondering what I was going to find when I got to my house!

But thank goodness, my house was fine. My mom and my dogs were fine. My mom said Trixie (Big Dog) had started shaking and freaking out, and then the sky had gone green, and it had gotten super windy,  and when my mom looked out the window she saw our neighbor's tree falling down. So she took the dogs and ran to the basement. 

Our power was out. My mom and I started taking a walk around the neighborhood to view all of the destruction. We actually saw the Channel Two news at the end of our street, doing a report! It was kind of funny because all of these little kids were lined up on the sidewalk behind the reporter, just standing there quietly in the mud, hoping to be on TV!

We also saw that two telephone poles in our neighborhood had been knocked down. That explained why the power was out! 

Well, the power may be out for quite a while! Its annoying, because some people in our town have power, but our neighborhood was one of the worst hit. The power will be out for the rest of the weekend, and possibly longer. 

So how am I writing this, you may wonder? My dad went and got a small generator. He had to drive for an hour to find a town that still had generators in stock! We've been running it all day, so we were able to keep the refrigerator cold, and also charge our phones and computers. And we turned on one lamp. So it isn't horrible. The worst thing about it is just being bored. It is weird how much we depend on electricity in our day-to-day lives! Even for reading, because I have a bunch of magazines downloaded on my Kindle! 

I thought it might be fun to do some things like play board games together, but when I suggested it, my parents looked at me like I was crazy. And then they walked up to the bar, leaving me here in the darkness! Boooooo!

I have to end this post abruptly, because my computer battery is about to die. I will write again when I can! Enjoy your light bulbs and TVs, you lucky punks! 

Monday, September 1, 2014

40 Before 40

I was reading the blog The Fairy Princess Diaries,where Jordyn, the blogger, was posting about her 30 Before 30 list. For people unfamiliar with the idea, it is like a Bucket List, except it is things you want to do before you turn 30. 

I have already passed the big 3-0, believe it or not (I don't really believe it myself) but I thought I might try a 40 Before 40 list. This may be a hard list, because I have actually done many of the things I wanted to do. In my younger days I was much better at fighting my anxiety, and I was also a little more impulsive. If I wanted to do something, I did it. I kinda wish I could be more like that now! My younger self was so much cooler than me! 

I may end up borrowing some ideas from other blogs as I work on this. I'll give them credit if I do. Lets see now.

MY 40 BEFORE 40 LIST (in stream-of-conscious order) 

1. Become a foster parent
2. Become an adoptive parent
3. Learn to ride a horse
4. Learn to play an instrument (Drums???)
5. Have farm animals
6. Grow my own garden and use it for food
7. Learn to drive stick shift
8. Hold a koala bear (Borrowed from My Thirty Things)
9. Go zip lining on a REAL zip line (not one that is only ten feet over the ground and goes over a corn field at the Autumn Fest) 
10. Swim with dolphins
11. Find a REAL best friend
12. Visit another country. (I sort of visited Naussea once. Is that a country? I don't think so. I spelled it wrong. You pronounce it Naw-saw. Yeah. I was there for like four hours once. But it doesn't count.)
13. Learn yoga well enough to do it on a regular basis. (Borrowed from La Petite Noob.)
14. Finish writing my memoir. 
15. Own a house
16. Make amends with some former friends I cut off ties with (Borrowed from Personal Excellence
17. Fly first class (Borrowed from Personal Excellence
18. Ride on the tallest roller coaster in the world
19. Donate bone marrow
20. Stay in a tree house overnight
21. Stay in a haunted house (other than the one I live in now) overnight
22. Climb a wall
23. Pet a penguin (also pet as many animals as I can!) 
24. Ride in a big rig (Ironically, my dad drives a big rig, but his company's insurance policy won't allow riders.)
25. Get hypnotized (Borrowed from Bucket List Journey)
26. Be in the audience of a TV show. (Borrowed from Bucket List Journey.) 
27. Be ON a TV show.
28. Learn to speak Spanish well enough to converse with others. 
29. Do one of those three-day-long walk-a-thons
30. Go on a really long roadtrip with no particular destination. 
31. See Niagara Falls
32. Learn to build a camp fire
33. Go on some sort of volunteer trip. Like a mission trip but without the evangelizing part.
34. Volunteer helping homeless teenagers
35. Get "Tori Joy's Smiles" back up and running. 
36. Improve my credit score. 
37. Rescue a senior dog or cat.
38. Get really healthy. (But I am NOT giving up Dr. Pepper, so don't even say it!)
39. Stay in a 5-star hotel
40. Have a family reunion. In Manitowish Waters, WI. 

Okay, so that is my list! If I can accomplish all of those by the time I am 40, I will feel like I've lived life to the fullest!
Do you have any more ideas for me? I could always add them to my "50 before 50" list!